Behind the Night
Celebrating Years of Commitment to Our Cause
The Eleanor Kaplan Foundation is a world renowned non-profit organization, founded by the Kaplan family, whose daughter is affected by TECPR2 neurodegenerative disease, to fund the final critical stage of her Gene Therapy CURE! Mutations in the TECPR2 gene cause symptoms eerily similar to ALS affecting the whole body. While focusing on the discovery and development of a Cure for TECPR2, this innovative research has led to potential treatments and breakthroughs for many other pediatric diseases. The Foundation has built a pathway for these children in need by revolutionizing the broken traditional model, through unparalleled collaborations with industry leaders, doctors, scientists, academia, and patient organizations worldwide. This commitment to serious, rare pediatric disease has enabled the Eleanor Kaplan Foundation to make new discoveries and approaches in the field of genetic medicine that aim to enable individuals to live longer, free of debilitating disease.
For more information about the Eleanor Kaplan Foundation, its work to cure Pediatric Rare Diseases and the life saving therapeutics being developed, please visit the Eleanor Kaplan Foundation's website below.
About the Night
Where
Boca Raton Museum of Art
501 Plaza Real
Boca Raton FL, 33432
When
February 22,2025
Saturday evening
From 7:30, Until 11:00
Cocktail Attire
Complementary Valet Provided
The evening will be filled with live music, delicious food and drinks, and the opportunity to connect with like-minded individuals. Guests will enjoy exclusive silent and live auctions featuring one-of-a-kind items, experiences, and luxury gifts. Every dollar raised will help fund vital research, support services, and initiatives that improve the lives of those impacted by rare diseases.
With only 40 children worldwide affected by Leni’s devastating condition, every gesture of support makes a meaningful difference. Inspired by the courage of children like Leni, whose battle against a rare disease led to the creation of Team Leni, One Rare Night brings together a community dedicated to providing hope and assistance for families facing these challenges.
The event will also highlight groundbreaking advancements in medical research made by the Eleanor Kaplan Foundation, including significant breakthroughs in treating Lysosomal Storage Disorders, Neurodegenerative Diseases, and conditions such as Alzheimer’s, ALS, and Parkinson’s. Through innovative work like the cure for TECPR2, the Foundation is making strides toward treatments that can transform lives globally.
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